Return to Hospital
15 March | We started out the day at the care
facility and they had not given Mary a meal that she wanted to eat. I
got her some oatmeal which she started to eat. When she eats, she has
pain. Before she finished the Ambulance came to take her to the
oncologist office for a follow up appointment. When the
oncologist saw how much pain Mary was in and the condition of her back, he
told us he wanted us to go directly to emergency at the hospital and
that he would fax the request to admit her. Back to step one. At least Mary was admitted directly into emergency and given more pain medication which knocked her out for a couple of hours. Then came some specialists in wrapping wounds and they cleaned and dressed Mary's open wounds from the shingles and the radiation. They gave her what would pass for a gauze bustier. Then the nurse came in to take pictures of the wound. Needless to say, the photo will have to wait for wound wrap change time. Mary was admitted to the hospital at five and the rest
of the evening was spent confirming medicines and documenting what had been
done and what needed to be done. |
16 March | The skin specialist came and changed
Mary's dressing. The dressing looked very good. I should get a
chance to talk to them tomorrow. Everybody had passed thru by the time
I had gotten there. The hospital didn't think that Mary needed the
supplemental water (by IV) and took it off. Since they took blood four times
yesterday, they seemed to know what needed to be supplemented. I
should be able to talk to the doctor tomorrow.
When I got to the hospital Mary was adjusting her bed
and the TV, a first since 5 January . She did not fall asleep all the
time I was with her and I left at 9 PM. We're in the same room that we had
when first admitted in January and have had a couple of the same nurses.
They couldn't believe the changes. When I am with Mary all the time, it is
hard to notice the changes, but if I step back (mentally) I can see definite
progress even though she cannot stand as yet. She can move herself slightly
in bed, she can roll onto her side, after being helped to a seated position,
she can hold herself upright for a limited time. From that seated
position, she can scoot forward to make transfer to a wheelchair easier.
These and other things that are so easy to us all were impossible for Mary a
month ago, and now she can do them. |
17 March | The best thing about hospitals is that
there is always someone to help you fairly quickly, the bad thing about
hospitals is that they are always there checking on you. When I
arrived, Mary was tired from constant service throughout the night. As they
had removed her catheter, they woke her early to go to the bathroom.
As they helped Mary, she was able to stand briefly - an important first. She
ate well and did well with her therapy. It is good to see her upbeat
and animated two days in a row. I got a chance
to talk to the hospitalist. He couldn't believe how well Mary was
doing. (He had tended her before and after surgery). He asked to have
a pain specialist come in to see about changing Mary's pain medicine and he
wanted to try a medicine especially for the shingles. Pain seemed much
better today. Less frequent and less severe. |
18 March | There has been little effect on
controlling the pain. The problem is that the pain is episodic and
when it comes there is no warning and the attack may be severe. When
that happens, they have to administer a pain killer thru the IV which knocks
Mary out. That happened twice today. On the
bright side, when Mary finished her therapy she was helped to a wheel chair
and remained there for about 3 hours. The more they can get her to
remain in a sitting position the better. Early in the day she is
capable of more than later in the day. |
19 March | Mary was doing physical therapy when I
arrived today and seemed better able to handle the pain. The wound
specialist changed her dressings and the skin is starting to heal both in
the area of the shingles and in the radiation burn.
Mary ate more of her dinner and drank two small cans of
Ensure while I was there. This should help. While she seems to be
getting stronger, she still cannot stand, even with assistance. |
20 March | Mary got to sleep late today. I
don't know why or how. When I arrived at 8:00 she was still asleep and
woke around 9:00. Probably was getting caught up from all of the night
time interruptions. As someone was going to come to talk to us about
retirement at 10, I got her started on her breakfast. Then the Nurse
came and said that they wanted to put in a PICC line (type of super IV line)
and it would only take half an hour to 45 minutes. Two hours later I
had talked with the STRS representative alone and he had to leave. We
decided it would be more advantageous for Mary to apply for disability than
to retire at this time. Mary finally returned
and did some therapy and then tried to eat some lunch, but it was not
very good. She has started bulking up on Ensure if she doesn't like
the meal. Her pain returned and she got a shot for it. This knocked
her out until dinner time. She ate part of my dinner (some shrimp)
that a friend had brought. But that spoiled her and she didn't want the
hospital's fish (which was very plain - no sauce, vinegar or lemon).
She did eat all of her chicken noodle soup and her Ensure. |
21 March | Today the doctor upped Mary's pain
medication, but I did not notice that it did any good. She was awake
when I got there and remained awake until she got her pain injection which
was around 9 PM and had moderate to severe pain off and on the entire
afternoon and evening.
Eating continues to be a problem. Mary says that she still feels some throat pain when she swallows and that the process of eating initiates the pain associated with the shingles. The oncologist came by and will come again tomorrow
morning to begin another round of chemo. Problem is that the chemicals
will make Mary weaker. She's being pulled both ways and the insurance is
demanding progress. |
22 March | The insurance threw me a curve today.
Sandra called at 11:30 to tell me that the insurance wanted to move Mary
today to the Assisted Living facility again. I called the hospitalist
and explained why I did not think Mary could get adequate care there and he
was able to convince them to let her stay a couple of days more.
Hopefully when she has to move, we have more than an hour warning to prepare
her and to gather all of her things from the room. Mary seemed in better spirits today when I arrived. Perhaps it was the unit of blood that they gave her. I will have to find out why it was necessary. When therapy came by, she had just received an injection of pain killer which makes her tired, so she did not have any professional therapy. Later I worked with her as best as I could while she was in bed. There are more things that she could do in the wheel chair, but I didn't want to risk moving her by myself. She ate fairly well at dinner, eating half the beef on
her plate and most of the zucchini. She also drank a nutritional supplement
that they had given her. |
23 March | Mary was doing her
therapy when I arrived. She looked a lot more awake than yesterday.
The therapist helped her to stand, and held her in an almost standing
position for about 30 seconds. They did this twice more. It was
fantastic seeing Mary standing even if she was not erect. I know that
this will help her confidence tremendously. The doctor is trying to
talk the hospital rehabilitation center into admitting Mary for acute
therapy, but they are balking in that she tires easily and the therapy lasts
off and on for about 3 hours. Blue Cross just
sent me the papers telling that Mary was to be transferred yesterday to an
assisted health facility. If she is not accepted into the acute rehab
at the hospital, I fear she will have to go back to where she was before on
Monday. Hopefully the doctor was able to get us more time at the
hospital. She did not like it there. |
24 March |
Mary stood with assistance four times today during her therapy session. As usually happens, I had just finished a half hour of therapy with Mary when her therapist arrived. Her session with the therapist was for 45 minutes. I hope this impresses someone downstairs to accept Mary for acute rehabilitation. Those sessions last approximately three hours and Mary is dreading the possibility of having to return to an assisted care facility. Mary seemed in less pain today, but
the pain specialist is going to try a different type of medicine tomorrow.
As I was getting ready to leave, she was having some severe episodes of
pain. We will see what tomorrow brings. |
25 March |
Mary continued practicing standing and stood for 30 seconds on 7 occasions, She is still not able to lift herself off of the bed without assistance, but can roll over and sit up at the edge of the bed on her own. The person from therapy did little other than get her to stand, but she worked hard with me for two half hour sessions. She was given an epidural injection this morning - the biggest needle that I have ever seen. The purpose of the injection was to limit the pain, but he said it might take 24 hours to take effect. After 12 hours, Mary was still feeling pain. The nurse on duty for Mary said that she suffers from shingles pain and that it is more prevalent when she is very tired. -- That might explain Mary's pain at about 7 every evening. A friend fixed some sancocho for Mary
and she was able to drink the broth, but was not able to eat much of the
meat, platano or yuca. It shows that Mary's lack of eating is not due
to dislike of the food. She normally would have eaten quite a bit of
the sancocho. |
26 March |
.The best happens when you have your back
turned. Mary was scheduled for a Trans Esophagal Echo Cardiagram
requiring anesthesia, so I got a sub in order to be with her. When I
asked the doctor why the test was needed, she explained that one of the
infections that Mary has (she has two staff infections) could cause heart
valve problems but that the latest tests for infection in the blood was
negative and that a previous echo cardiogram was clear enough to show that
everything was all right. The exam was therefore canceled. I
took that opportunity to go to the post office to send something by
certified mail and upon my return Sandra told me that Mary had stood for two
minutes. The therapists were very happy with her progress. Later the insurance representative came and we talked about what happens next. He said they are going to evaluate Mary to see if she is sufficiently ready for acute rehab which requires three hours of therapy per day. Mary is enthusiastic about the possibility and it would keep her close as it is in the same hospital. He also authorized the payment of the same oncologist that we have been seeing at the hospital even if we go somewhere else. The oncologist was similarly pleased and came to talk to us. Mary is presently on phase two of the chemotherapy. What will tomorrow bring? |
27 March | I got a text message today from Sandra
saying that Mary had taken two steps. This made me very happy as it is
s signal to me and especially to her that she is slowly returning to her old
self. We have no way of knowing what price she has or will pay from the
myeloma or the surgery, but we do see that recovery is truly beginning.
Our hope is (was) that she would be accepted downstairs for acute
rehabilitation, but she was told that she was not yet strong enough to
participate in their three hour program and would be discharged to the
convalescent home today or tomorrow (and now they won't tell us when.)
Mary hopes were dampened but her spirits were lifted when Carlos Murrilos came by to wish her well and played the harp for her. Needless to say the door to her room was a favorite loitering place for a while. While Mary is not happy with the decision being made for her (us), we need to look at the move as a step in the direction which may lead us back to acute rehab as she continues to gain strength. Each day is a new challenge. |
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